Culture,

Communication &

the Quality of Life

of People Living with

HIV in Hong Kong

 

Rodney H. Jones

Christopher N. Candlin

Yu Kam Kwan

City University of Hong Kong

 

 

 

 Summary

 

 

 

 

    Introduction

 

*   What is Quality of Life?

*   The Role of ‘Culture’

 

 

 Methodology

*   Data Collection

*   Data Analysis

*   Verification Techniques

 

 

 Factors Affecting QOL

 

*   Disclosure

*   Availability and Quality of Care

*   Medications and Treatments

*   Social Relationships

*   Social Inclusion

*   Relationships in the Family

*   Relationships with Spouses and Partners

*   Relationships with other People with HIV

*   Work Capacity and Financial Concerns

*   Negative Feelings

 

 See Graphs

 

 

 Understanding Barriers to QOL

 

*   Patterns of Communication: Stigmatization and Surrogate Communication

*   Cultural Models of Communication in HIV Care

*  ‘Talking’

*  Information

*   Communication among caregivers

 

 Conclusion and Recommendations

 

*   Quality of Life: A Functional Perspective

       See Charts

*   Recommendations

*   What Caregivers can Do

*   What PHAs Can Do

*   What Government Can Do

 

 References

 

 

 

 

 Download the full report as a .pdf file

 

 email the Researchers

 

 Workshop for Caregivers

 

 This research was made possible by a grant from the AIDS Trust Fund

 

 

 The authors would like the thank the following organizations, institutions and individuals for their kind assistance in completing this project: AIDS Concern, Hong Kong AIDS Foundation, Society for AIDS Care (and the Lookout), Special Medical Service (Queen Elizabeth Hospital), Special Preventive Program (Department of Health), Dr. Kenny Chan, Ms. Rita Chung Wai Yee, Ms. Jenny Law, Mr. Barry Lee, Dr. Patrick Li, Ms. Edith Liu, and Ms. Loretta Wong.

 

 

Other Sites of Interest

 

 A preliminary investigation of HIV related risk behavior and vulnerability among Men who Have Sex with Men in Hong Kong

 

   The Research page of Rodney Jones

 

   Rodney’s Homepage